Enterprise Informatics: Key to Precision Medicine, Scientific Breakthroughs, and Competitive Advantage
Over the last few decades, finance, retail, and other industries have revolutionized the way they do business by taking advantage of the transformative power of aggregated data and implementing large-scale automation.
Meanwhile, the healthcare industry has lagged behind. Why? And when will healthcare finally be able to make progress on an equally game-changing level?
Now, is the answer delivered by this paper, which explains how recent technological advances allow healthcare delivery and life sciences research organizations to leverage their data in powerful new ways. Optimal use of these innovations will result in better decisions, faster discovery, greater productivity, and higher-quality patient care and outcomes enterprise-wide.Learn more about this white paper »
Translational Research 2.0
Translational Research is the process and means to accelerate the speed with which bench science and discoveries translate into bedside therapeutics and treatments. However, research productivity is currently facing a crisis as pharmaceutical company pipelines decline and the pursuit of improved healthcare delivery increases.Learn more about this white paper »
Better Health Through Better Information-Comparative Effectiveness Research
This brief will provide an overview of the history of comparative effectiveness research and some of its recent successes, how it will be and should be expanded to improve health care delivery, and how this research can be carried out to address critics’ concerns.Learn more about this white paper »
Challenges of Creating An Integrated Data Repository
Researchers need need a data repository with the accompanying tools and applica-tions that allow them to add new data elements, aggregate disparate data sources and types, and extract and analize data all in an effort to identify patterns and ÿnd novel conclusions. We call this combination of data repositories, tools and applications a Clinical Registry. In this paper we discuss some of the more common challenges that medical researchers and physicians face when creating, implementing, and maintaining a sophisticated biomedical research respository.Learn more about this white paper »
Clinical Decision Support Systems – State of the Art
This review presents a summary of the state of the art of electronic CDS for clinicians. It includes background information on the types of CDS and focuses on the outcomes of deploying these CDS interventions. It also discusses the major issues and challenges of CDS implementation and evaluation.
After reviewing what is known about implementing CDS, the impact from its use, and the knowledge gaps that remain, the review examines factors that can facilitate broader use of CDS.Learn more about this white paper »
Clinical Practice Improvement And Redesign-Change Supported By Clinical Decision Support
While this paper focuses primarily on electronic CDS, the concepts illustrated here can also be applied to paper-based tools. Electronic CDS includes computerized alerts and reminders, EMRs/EHRs, computerized provider order entry (CPOE), eRX, bar-coded medication administration (BCMA), and stand-alone or integrated CDS systems. Paper CDS includes paper medication administration records (MARs), paper order sets, paper guidelines, and any other paper tools used to support clinical decision-making.Learn more about this white paper »
Comparative Effectiveness Research – The Real Recovery Plan For Healthcare
Despite incredible advancements in medicine, healthcare providers are still unable to answer basic questions like, “Which intervention works best for whom; in what setting is it best delivered; and under what circumstances is it better than an alternative intervention.”
While the topic of EMRs has grabbed more headlines in the media, this indispensible white paper proves that equal or even better strides can be made using comparative effectiveness research tools such as registries to improve care, reduce costs, and improve research.Learn more about this white paper »
Disease Registries – The Track To Better Healthcare
Disease registries vary in sophistication from simple spreadsheets that only can be accessed by a small group of physicians to very complex databases that are accessed online across multiple institutions.” Because most researchers use spreadsheets and homegrown databases, they are forced to use whatever data sets might be available. Typically, these one-size-fits-all data sets are not specific to their research and, as a result, users are not able to search and report with sufficient specificity to identify trends and patters in their search for novel conclusions.
Choosing the right disease registry solves the one-size-fits-all problem and enables a 360-degree view of disease-specific data. The ideal disease registry will ensure that clinicians and researchers are able to appropriately focus on what they care about–new discoveries and ultimately better health care. This paper explores the features, benefits, and usage of the more sophisticated, or, ‘ideal’ disease registries.Learn more about this white paper »
Integrated Research Systems – Accelerating Medical And Healthcare Research
Personalized approaches to drug discovery, drug development and clinical care promise a new generation of preventive health care, and research organizations engaged in basic research, biomedical research, health research, and medical research are beginning to look to research systems which utilize interoperable software tools, standards, databases, processes, and computing infrastructure to accelerate the shift to a personalized medicine paradigm. The traditional scientific cycle in which theory offered predictions that could experimentally be tested is giving way to one involving data-intensive science. This paper explores how integrated research systems are key to helping researchers conduct research within the context of this new scientific cycle.Learn more about this white paper »
Perfect Storm – How IT and Public Policy Are Converging To Cure Healthcare Illness
Our country’s healthcare crisis will not be resolved by yet another stand-alone program; it will be driven by a convergence of technology breakthroughs coupled with new public policy initiatives.
This paper describes our current healthcare crisis and how an unprecedented convergence of technology and policy have already begun to solve the problem.Learn more about this white paper »
Registries: The Missing Link Between Researchers and Clinicians
As the technology around clinical data management progresses, a robust clinical informatics platform becomes critical for success.
Choosing the right registry solves the one-size-fits-all problem and enables a 360-degree view of disease-specific research informatics. A modern, robust registry will ensure that clinicians and researchers are able to appropriately focus on what they care about…new discoveries and ultimately better health care. The key to clinical informatics is the clinical data management system you operate.Learn more about this white paper »
Registry Challenges In Rare Disease Research
The lack of a comprehensive registry that enables researchers to collaborate electronically and pool and share patient-level data and clinical results adds years to rare disease research, in many cases preventing important compounds and medical devices from ever reaching the market.
A way to reduce costs is the creation of an enterprise class registry architecture that accommodates technical research requirements with minimal configuration, enabling it to be customized for any rare disease. Such an approach maintains the specificity of the registry while building on the cost and time savings of economies of scale that are not typically available to small research organizations. This is a must-read for all rare disease researchers.Learn more about this white paper »
Report To The President And The Congress On Comparative Effectiveness Research
The Council’s vision for the investment in comparative effectiveness research focuses on laying the foundation for this type of research to develop and prosper so it can inform decisions by patients and clinicians. The Council specifically focused on recommendations for use of the Office of Secretary (OS) funds to fill high priority gaps that were less likely to be funded by other organizations and therefore represent unique opportunities for these funds. The paper outlines a vision, focus, criteria, and more.Learn more about this white paper »
Research Rewired- Merging Clinical Care And Medical Research Information
This must-read, complimentary white paper covers significant changes in the information management and technology strategies of research institutions, pharmaceutical companies, and care delivery organizations participating in research and trials. Topics include research registries and comparative effectiveness research.Learn more about this white paper »
The 100 Initial Priority Topics For Comparative Effectiveness Research
The ARRA of 2009 called on the Institute of Medicine to recommend a list of priority topics to be the initial focus of a new national investment in comparative effectiveness research. The list provides a starting point for what the report says should be a sustained effort to conduct comparative effectiveness research.
Ultimately, research on these and future topics will not yield real improvements unless the results are adopted by health care providers and organizations and integrated into clinical practice.Learn more about this white paper »
Using Disease Registries To Enhance The Value Of Your EHR/Other Clinical Systems
This paper clarifies the different decision support contributions made by patient registries, disease registries, EHRs/EMRs, etc. in order to make an educated decision of which system to implement. Choosing the right system that enables a 360 degree view of disease-specifc data will ensure that clinicians and researchers are able to appropriately focus on what they care about–new discoveries and ultimately better healthcare outcomes. This paper explores and compares each option and gives suggestions on how these systems should work together.Learn more about this white paper »